Lupus and You

Men Have Lupus, and the men they serve, need superheroes. The best part is we don’t require capes. Please bare with the information overload. Awareness is crucial.

Lupus is an autoimmune disease (not acquired immune) in which the immune system is out of control beyond measure. The immune system views normal body functions, i.e. kidneys filtering, skin healing, blood vessels constricting, etc.; and attacks the normal functions, causing severe issues up to and including organ failures and death.

Men Have Lupus was started in 2014 when Louis Obadal was diagnosed with Lupus. He took 2 doctors and 7 months to be diagnosed while most Lupies take 5-7 doctors and 10+ years to be diagnosed. Lou’s secret weapon was Heather, his wife, who switched form investigative journalism to spousal caregiver after being informed he’d die otherwise. There is now a hidden support group only for men with only 150 members, and Men Have Lupus was named #13 in the top 50 Lupus advacates in the world; being the only advocates for men primarily.

Archaic data, along with medical and social stigma are allowing around 2 million world to go undiagnosed and potentially killed by this disease. Archaic data states that between the ages of birth to 17 and 60 to death, the male cases of Lupus are 50%, yet 18-59 is only 10%. This same archaic data states that black people have thicker skin than white people, and can tolerate more pain. That should tell you everything.

This is where you come in. We are ready to turn full 501c3. We need you though. Our non-profit will be based on testing and helping. We will test more men for Lupus to correct incorrect data, and eventually test to stop Lupus. The next is assistance. We will divide this into three categories. First, we want to help anyone struggling with Lupus and awaiting disability help with medical, utility, or grocery assistance. Second, we want to have space for those homeless while awaiting disability to have a place to live where we can help them. Lastly, we want to do a retreat on our property for men with Lupus and their families to help them learn how to more efficiently live with Lupus and their disabilities, as well as be able to get a break from the real world.

We have set up a PowerPoint for you to view and a direct link to help. We also are having the Great American Lupus Race for truckers and trucking companies, as well as their pledges in December. We also have a Scentsy party and Avon store so you can do all your personal and holiday shopping while helping Men Have Lupus. We will email a tax deductible receipt for any of these. Lastly, if you’re a company owner, we ask that you pledge to provide ANA panels for your employees. Lupus can go into remission with medication, and remission is far less costly for your company than an employee having organ failure or death.

The costs for testing for Lupus vary greatly. An ANA panel averages $100. If that is borderline or positive, three testing options will be next. A venom panel costs $500 on average, a spinal tap costs $5000 on average, an organ biopsy averages $3000. What can you spare to help us on our path to ensuring more people will leave with disease, and eventually make Lupus obsolete?

Bible verses for today’s meditation and inspiration: Matthew E. McLaren

2 Corinthians 2:14 But thanks be to God, who always leads us in triumph in Christ, and manifests through us the sweet aroma of the knowledge of Him in every place.

Romans 6:17 But thanks be to God that though you were slaves of sin, you became obedient from the heart to that form of teaching to which you were committed,

2 Thessalonians 1:3 We ought always to give thanks to God for you, brethren, as is only fitting, because your faith is greatly enlarged, and the love of each one of you toward one another grows ever greater;

1 Corinthians 1:4 I thank my God always concerning you for the grace of God which was given you in Christ Jesus,

Philippians 1:3-5 I thank my God in all my remembrance of you, always offering prayer with joy in my every prayer for you all, in view of your participation in the gospel from the first day until now.

Colossians 1:3-6 We give thanks to God, the Father of our Lord Jesus Christ, praying always for you, since we heard of your faith in Christ Jesus and the love which you have for all the saints; because of the hope laid up for you in heaven, of which you previously heard in the word of truth, the gospel.

2 Corinthians 8:16 But thanks be to God who puts the same earnestness on your behalf in the heart of Titus.

Psalm 75:1 We give thanks to You, O God, we give thanks, For Your name is near; Men declare Your wondrous works.

2 Chronicles 29:6-14 “For our fathers have been unfaithful and have done evil in the sight of the LORD our God, and have forsaken Him and turned their faces away from the dwelling place of the LORD, and have turned their backs. “They have also shut the doors of the porch and put out the lamps, and have not burned incense or offered burnt offerings in the holy place to the God of Israel. “Therefore the wrath of the LORD was against Judah and Jerusalem, and He has made them an object of terror, of horror, and of hissing, as you see with your own eyes.          

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